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Dear American Culture: I Quit!

Dear American Culture: I Quit!.Awesome inditement of American trashy, tabloid, reality show culture, and it’s effects on media with good solid meaningful writing…


So true, so true…even my beloved History channel is less and less good stuff….

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Filed under Life After The New Depression, Uncategorized

Bi-Vocational Clergy?! Nothing New Here!

I read, with interest, the following story in The Atlantic…click here to read.

“Higher Calling Lower Wages, The Vanishing Of The Middle Class Clergy”
By David R. Wheeler

(This commentary also appeared as a comment at my Facebook Group, Not All Catholics Are Roman…But All Catholics Are One)

Protestants and Evangelicals are learning what Independent, Gnostic, Celtic, Old, and even some Orthodox clergy and denominations have known for a long, long time. There are going to be denominations, dioceses, and even parishes/communities that literally will be so big and so complex that a full time clergy, being paid a decent living wage that allows them to pay off their debt, is required. Those denominations in that situation DO have to engage the entire denomination in a discussion of priorities. What is more important? To buy the (admittedly cheap forclosed) Crystal Cathedral in the next city over, or to make sure your Director of Diocesan Clergy has not just his M. Div., but his MBA with a minor in enough social work classes to be able to help the pastors below him manage parishes AND catch the subtle signs a certain clergy is going waaay off the path, perhaps even into pedophilia?!

For denominations large or small, growing or shrinking….this is to me one of the more important points: What drives your decisions on clergy education requirements and pay? Who are you listening to more….Ceasar and money, or the theologians of your faith? How can your denomination or parish claim to posses truth, morals, and leadership if the bar to be clergy is so high and expensive, but the pay so low, that your pastor must default on his or her student debt?

Another quote I think is very important to this discussion: “One example of a deliberately bi-vocational church is Love Chapel Hill in North Carolina, where five co-pastors share the workload of the church and work other jobs on the side.” Now this, I am sure is going to sound very familiar to a good number of non-Utrechtian Old Catholics, independent Catholics, and other small Catholic denominations.  It plays right into an issue we have for years had debates about here on this group – how many clergy is too many clergy?

A story: Last year, as you veterans know, Brian and I went to the very informal ISM Family Reunion in the Asheville, NC area. We met and became friends there with Bishop Ron Shelton, and his Celtic Apostolic Church (Ron, correct me and forgive me if I got that wrong…I am sick in bed today with just myself and a tablet while they boys are at flag football, so your card is far out of reach).

We met Rev. Gerry, an older woman who, as Pastor, immediately knew what was needed, where things were, and who to send fetching when Brian and I, after more drama than you can imagine, finally arrived that Sunday. You could stand next to this woman and just KNOW she could command anything that community might deal with, from a fued amoung families planning a wedding to a terrorist strike causing a plane crash in the parking lot. Ron knows it to, and merely stayed out of her way.  Everything I later learned about her from folks like Phil Biesi confirmed that impression, and also clued me in that she can hold her own in a good many theological discussions, and has other duties.

I met the young seminarian, and then with my MS addled brain, forgot her name. A young mother with small children, We shared smiles and a few words, but enough that I know if in the future my daughter, who lives about 2 hours away, ever send me a request to help one of her friends struggling to find God inbetween diapers and those horrid $3 per minute late fees at the daycare pickup line I know EXACTLY who to send her to. (By the way Ron…have pity on me, and post her name and how she is doing!)

Now, I did not get to meet the more than token African American priest, as he had other commitments that day. However, Ron, Bishop Ed, and Phil told me quite a bit about how he was taking Celtic theology but expressing it in the lively evangelical way that so many traditionally African American Churches have become famous for. Later, on our way home, I met a woman who swore that he was the first minister who had ever made God sound real. She had been to exactly ONE service, having gone with a friend, but months later could still tell me parts of his sermon she was still thinking and praying and reading her bible about. I suggested that since the one time taste of the cookie had turned out to be so filling, she ought to go back and taste what a month’s worth of such fare might be like. It isn’t important if she ever went back…that clergy person changed that one person and for one moment made God real to her.

Since he lives, literally, less than 10 miles away, that community is also where Ron is known to say a mass or two. Altogether, at the time, they probably had less than 20 “official” lay members, and weekend attendence of not a whole lot more. Area Fundamentalist churches spread rumors about them, denounced them as evil, and while they had good relations with the pastor of the area Roman Church, the Roman Bishop of the area certainly wasn’t calling Ron to go have coffee and discuss international day of prayer.

How many clergy? To how many laity? What was that ratio?
It was just enough. Which is undoubtably exactly how God planned it, and why he had these 5 very different people, all of whom shared a love of all things Celtic and Catholic, to end up meeting each other.

This church had been criticized as a “collection of clergy in search of a reason to exist”. A problem church. Just another example of why the Independent Catholics will be forever “a mess” / “disorganized” / “ineffective”.

This church opened their doors to the Gnostic, Old Catholic, Ecumenical Franciscan, Independent Catholic, and Roman Catholics who made up that ISM Family Reunion. Each of us went home having listened to the others, and knowing a lot more about what things we had in common, and what things we didn’t. Most of all we went home after relating to each other as fellow humans and Catholics.

How many clergy did they have?
Just enough. They were not, and I am willing to bet are not today, a “problem” church. They may have been a church with a marketing problem – after all, who better to start a diaper drive for the local woman’s shelter than the young mother seminarian? One newspaper story of her munchkins climbing on the piles of diapers as she sits there in her seminary collar explaining why Celtic Catholics view social justice a little differently than their Roman cousins, and “BAM!” I guarrantee the following week there would be at least 2 or 3 young mothers, who would then go to a mass where no one made them sit behind bullet proof glass and no one cared if the 18 month old toddled up to Rev. Gerry mid homily, only to be carried back like she was a grandchild instead of an interruption. (That idea isn’t copyrighted. All you denominational leaders with young mother seminarians, go ahead. Try it! Then post photos here.)

This article was bemoaning the fatw of clegy who go, as they said, $80,000 into debt only to find they can’t get a job. It talked about bi-vocational clergy like it was the latest greatest new thing.

Paul made tents. Matthew banged on doors to collect taxes. Peter was a fisherman. Mary Magdalene invested and managed her funds to create income. Martha cooked, cleaned, and washed. Pricilla and her husband ran a family business. Bi-vocational clergy should be the norm, and because bi-vocational clergy have other work, families, and responsibilities, there is a valid reason for God to decide that the old imperial model of a single priest with maybe an assistant pastor and a lay or religious secretary is just plain wrong.

That last thought is going to be uncomfortable with a lot of folks, especially in denominations that invest all the parish authority in the priest who is pastor (and way too often white, older, and male). It will surely generate the usual slew of private message hate mail from single priests with fancy garages and lots of lacey things from Will and Balmer. It is entirely possible that one or more of the older, male, white guys who wear white beanies won’t like it either. Tough. Having been the sole owner of a few business endevors, I get it. It feels good to be the King. Or Queen. But, no matter how nicely it is dressed, or how innocently it comes into your hands, power corrupts. Absolute power corrupts absolutely.

And the last place you want absolute power corrupting absolutely is in a Church. Bi-Vocational clergy by the very nature of being so must learn to share power and authority. They have to share. Be it sharing with laity, religious, other clergy, or heaven forbid, the denomination down the street, bi-vocational clergy have to do that, or they remain trapped in the tiny world they can build part time. Pastors have to let the music minister have the ability to change songs. Clergy professors have to admit when the seminarian happens to be more right, or at the very least let graduated seminarians not yet ordained teach the Theology 101 class. That gives the Professor more time to make sure that “Comparitive Thomasian Commentary” has a lesson plan that can be delivered online at 1/3 the cost. Directors of denominational seminaries need to wake up to the fact that if the college down the street has a bible history class as part of it’s humanities program, it is not the end of the world if the seminarian goes there on Wednesday nights instead of your seminary class that is Tuesday-Thursday. Even better would be admitting that the faculty at University of NH blows doors off your M. Div. Because they spent last summer on a dig in Isreal, so you cancel your seminary class and just send everyone to that class and give them full credit.  Bishops, for the love of all that is Holy, identify your clergy who manage well. Check out the linked in profile about their past jobs or current jobs. Stage a fake terrorist plane crash and watch which clergy rise to lead. Then, make them pastors, and unless there is a confirmation, get out of their way. Go finish the policy manual so they have a nice 3 ring binder to pull out when someone says “Hey, can we go ahead and start having the 10 year olds do one homily a month?”, “Joe is homebound, but has a 3d printer. He has edible ink made from wheat. Can I consecrate that, so while he watches our live stream mass, he can print and take communion?”, and all the other questions pastors deal with. Then they just flip open the binder, check the index, and say “Mary, go ahead and plan an essay contest for children’s mass 12 weeks from now. Winner gets to read it as homily. Make sure to give them the right readings – that is feast of St. So and so.” “George, tell Joe to write up his request, but it will have to go up to the liturgy committee first, then be checked by our head theologian, Bishop What’s Her Name. And make sure he is on the list to get a Eucharistic Minister to do lay liturgy with Eucharist at his house in the meantime.” No dithering, no emails bugging you while you and the bishops at your town’s Christian interfaith Confrence work out the group “Our Father” and prayer for peace you are doing at that big mall next month, which might just save a few souls.

There are lots of us already in denominations doing all these things. Bi-vocational clergy, having multiple clergy and lay ministers so different people can hear in the language of their life is common in some OC/IC communities, and to their credit some progressive Roman parishes. Yes, many Anglican and Episcopal, Roman and other denominations, dioceses, and parishes can and should read that article, these comments, and do some research on these concepts.

But, you IC and OC, you progressive Roman parishes and communities out there…..God gave you a light, why hide it. Google the other churches in your area, regardless of denomination. Handwrite a letter offering to meet for coffee. At coffee, invite that pastor to come to a mass or some other event like a potluck. Build some bridges. Let them see what bi-vocational clergy, sharing of authority and power, investing laity, and all the rest look like at your house. When offered a return invitation go with an open mind to thier house. Not every denomination is going to have a theology or a governance that can tolerate bi-vocational clergy. That doesn’t mean however, that God may have given them some other gift that your community despretely neeeds.

In other words, get up from this desk, away from this keyboard, and like the article said….Go. Out. Walk. Talk. Build the city of God.

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Filed under Catholicism, Education, Mentoring, and Teaching, ISMFR 2013, Not All Catholics Are Roman, Religion and Faith

How many days left? 23?! Oh My ……

How many days left? 23?! Oh My …….

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My Future In A Poetic Cup Of Tea Leaves

Someone a bit further down the road I am traveling wrote a searing first person account of the day before being placed on a feeding tube.

This is the address:
Or  You can read it here.

It was scary to read, but at the same time unavoidable.

I came close again this spring to having to sit in that office and talk about a feeding tube, when at the last minute, after fighting for 2 years, NH Medicaid finally gave in and covered the 3 cans a day of ensure I need for 24 days. So far it is working, and my weight is slowly going up. However, no word yet if they will continue to cover it or not.

Someday though, I will lose the battle with gastroperesis, an unwelcome gift from the lesion damage of multiple sclerosis. Already it takes my stomach over 4 hours that a normal person is rid of in under 60 minutes. A dairy free vegetarian,  almost everything I eat is inheretly low fat. On the days I plan to do nothing more than lay in bed and write, I must eat over 1700 calories. If I want to be active, washing dishes, writing, gardening, or any of 100 other tasks, I sometimes discover that I must consume as many as 2500 calories between 6am and midnight.

It gets exhausting to eat, and on the budget allowed on a low fixed income, the ability to have variety is near non existant. Some days I swear I can’t do it any more, can’t pay this thing away. Some days I swear I can’t do it,  then a commercial ad “looking for this?” bruskly moves me out of the area I was in, and convinces me that yes, I can eat food pantry oatmeal for breakfast every morning, twice. Down an ensure while dressing. Eat food pantry rice or pasta with home grown veggies at lunch, and another ensure at 3. For dinner? More rice, pasta, beans…broken up exactly 12 times a month by a single Morningstar item that makes me feel like I am eating real chicken or steak in a parody of whatever cooked from scratch Betty Crocker miracle I have made for my guys. When we can, I have whatever cake, brownies, pies, or candy we can scrape together money to buy. Down an ensure with bedtime meds. 

Actually, even thinking about what I will be eat in 3 hours is exhausting. That’s one reason I have home care aides. They know to just cook something, anything, as appetizing as their skill level allows, and take away the burden of trying to stare into a half bare pantry, mentally subtract the things I must save for the guys, and choose. Sometimes, picking what’s for dinner is a supreme act of mercy.

This writer has hit the wall. The only way to pump enough food into her mouth to keep her weight on even a somewhat sustainable level is to surgically insert a tube to constantly push in bags of unflavored Ensure. So she will never tase cinamon again, or the crisp of a potato chip. Just a sense of fullness as one bag empties, to be replaced by another. She speaks of the pain, the questions, the wishes for more time, even as she knows they don’t matter.

It is like looking at my future in a gypsy’s tea leaves….that God, science, and I may delay….but which will, like the grey hairs on my head, come unbidden and most likely without warning. One would think it would cause me to slowly savor each bite, roll it around my mouth tasting and feeling the texture. Sometimes, I still can, but all to often eating is a mechanical thing I do, a life sustaining procedure no more enjoyable than the 8 times a day I take medicine, or the monthly trip to the Doctor.

I decide to try, after reading her poem, to go find dessert that I can actually enjoy, can take an extra minute to let sit on my toungue. “Yes” I say to myself “There has to be a bit of caramel, or chocolate left I can drizzle over the pantry cheerios. That would taste.”

I glance at the clock, and it glares back that it is 9:56pm, and I am 400 calories short for the day.

No time to hunt for caramel, I double up on the ensure by adding 200 calories of soy powder to it, and choke it down fast so I don’t taste the chalky bite. Exhausted, I head for bed, wondering if  tomorrow will be my turn to be like her…broken.


Filed under Cooking, disability, Mental Health, Multiple Sclerosis and other Neurological Diseases, poetry

Thoughts When Evangelical Essays Get Thrown on my Catholic Group.

I logged on to my facebook group about midnight with every intention of going to bed early. William, a member had posted a lunk to an essay by a young Evangelical,
Read orginal Article Here

On his personal journey in how to reconcile GLBTQ marriage with his denominational family. In it he outlines how his studies have led him not only to be opposed to (at a minimum) marriage equality, but also newly opposed to birth control.

William’s comment was

“I especially commend this piece from First things.”

And all 100 of my most active pro-marriage equality members were staying away from commenting with 10 foot poles. This was obviously going to intrigue some of the other 1400 members, so before I started getting private messages asking why so and so hadn’t put a comment, I wrote the following:

(Note that there is virtually no one more fearless sitting in the back pews in scruffy lay Franciscan robes than an MS patient. We are slowly dying anyway, so why not raise a hand and speak?)


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Filed under Catholicism, Family, Human Rights, LGBT, Not All Catholics Are Roman, politics, Religion and Faith

My Schedule For Today. With Commentary.

It is 11am, and I realized that spiderwebs were taking over my blog. So, With nothing of great substance or import to write about, Today’s entry is…My Schedule For Today.

With commentary.

It is 11am (when I am starting this). So far I have:

Gotten up at 4am needing headache med and cold cloth, collapse back asleep.

Up at 6am, taken meds, collapsed back asleep These are the anti-spasm ones that curl my ankle, toes, fingers and wrists

Up at 7am for first of 6 meals, more meds. Amazingly, with everything I take, none of it is particularly interesting to anyone but a fibro/MS patient with a bad gut. Until some idiot discovers a way to make meth out of laxatives or tums, my meds are of interest to none of the thieves.

By 9 am I was sitting up, talking over the day’s plans with Brian, baby talking to puppies, waiting for heartburn from breakfast 1 to calm down enough to get out of bed.

By 10am I was at work. Typing, copying, etc. Like all home workers dream of, still in my scotty dog printed PJ’s and Old Memere style velveteen slippers. Yep, it is as amazingly fun as you think it is. Sorry to all the Dilberts out there sweating in suits.

Remaining on the Schedule:

  • help Brian get his state benefits re determination done, a God awful process of rounding up papers and then standing in line at welfare office. In his case, it is to get re-approved for his home care services for another year.

    When the ministry was going full bore with 150 members I would usually do this with members at least three times a week. The big difference between our ministry and other agencies is that we would actually go stand in line with the member, and help them understand the muffled voice of the staff member on the other side of the glass.

    No one in our state had the brains to take all the loudspeakers and number board signs from all the closed DMV offices over to the Department of Transitional Assistance, so the poor workers have to just about shout to even have you hear anything through the bulletproof 2 inch glass.

    About 18 months ago, the state launched NH Easy, a web based application to do all this stuff online, but even 18 months later it doesn’t work for a huge percentage of taxpaying customers.

    If we are lucky, this will be a quick trip, as we never, ever go Monday mornings. Every single person who has had a problem with an EBT card, a breakup of a relationship, a new baby, or the lights shut off between 4pm Friday and 9am Monday all converge on the place at once. No one st the state legislature has figured out that having extra windows and part time staff for Monday morning would make the entire system more efficient and less costly.

  • working on a spreadsheet for a business project related to the Subdural Blues Media Company my friend and I started last fall, then had to stop while I snow shoveled my way into being bed bound more than any of the last three years. This os something that will probably only take about 20 minutes before I discover that cell b26 needs a number that I will have to go dig through a bunch of files to find. No biggie.

  • finish reading about three free software packages that will track who is reading/sharing what on the fb group, hopefully enough to decide on one and start using it next week. I get good feedback based on private messages and posted comments, but I really need a way to get hard stats. With WordPress, I get all kinds of stats for free with the built in functionality of the application. Google + and Facebook? Yeah, as if.

  • Maybe get a chance to talk with a friend who is tech savvy enough she may be able to “cover” 3 hours a week of watching the fb and google+ posts on my 1500+ group for me, in return for a “moderator” title and a bunch of job reference letters. Anyone else interested in such a deal, private message me!

  • Fill in addresses on 4 more invites and mail them, although already know they are coming, they will need to bring the country fair reception tickets with them. Wedding is still kind of a pressure cooker, but also getting exciting seeing the calls etc coming in of who is coming.

  • Read at least 10 pages of The Eucharist Yesterday and Today by Basil Pennington (part of my acolyte / sub deacon homework) and a welcome break for my brain from the number crunching. If you are a Catholic of any type, I think it is definitely going to be on my Goodreads recommendations list.

  • Houseclean the bathroom because my aide is out sick going on two weeks, and some things just can’t wait. Unfortunately, this one task is going to take 40 minutes and require enough bending and twisting it is going to seriously skyrocket my pain level…which is why my aides are supposed to do it. Hopefully however I will be able to pul it off without falling, like I do if I have to do thinks like get cobwebs off the ceiling.

    This whole aides/LNA’s/PCSP’s thing is extremely messed up in NH, so a cripples greatest fear is that the aide will get seriously sick. First, the pay is so low all of them qualify for welfare except the married ones with no kids and spouses who have really good paying jobs. They are great aides, but they generally only stick around until nursing school gets so busy they become full time students.

    For the rest, the state of NH has strict rules that you can’t get welfare unless you are permanently disabled or in school, working, or in a vocational program. There is no free ride here. They put hundreds of welfare to work participants through LNA training, but slashed the daycare subsidy so scores of LNA’s are now unemployed or underemployed because if you earn $10 an hour doing home care, but pay $7 an hour for daycare, you can’t buy gasoline to get to client’s homes. Close to 90% of the Home Care Agencies running in the state do not provide a vehicle, travel reimbursements, or any of the things that Merry Maids does, which is probably why every year at least 1% of home care aides decide to go work for Merry Maids and drive around in yellow station wagons to clean rich people’s homes.

    I sent some state reps two great ideas to solve this.

    Idea #1: Lots of the folks getting home care are old Grammas and Grandpas who own their homes, and are struggling to cover the taxes. Lots of LNA’s and the unlicensed versions PCSP’s are either close to homeless or already homeless, because it is becoming near impossible to own a car and rent an apartment if your take home pay after daycare is only $3 an hour.

    So, pass a law that gives the Grandparents who need home care a tax break if they let the LNA or PCSP live on the property in a camper, tent, or in their car. Give them a second discount if they provide the LNA with a porta potty and a hose hookup so they have drinking water.

    BAM! Better home care, less homeless LNA’s, Grandma’s not dying from the de facto state death squads the Tea Party put in in 2010. No takers yet….but I am grateful to the two democrats who said it is a great idea, especially since our country homeless outreach usually can’t do more than provide a tent when an LNA becomes homeless anyway.

    Idea #2: The two democrats also liked the idea that Home Care Agencies not be permitted to hire bunches of LNA’s and PCSP’s, and then give each one 2 to 10 hours a week. I met one LNA who had to sign with three agencies to get the minimum 30 hours a week of paid work required by the state so she could continue to get food stamps and Medicaid.

    Do you think these ideas are good ideas? Awesome! Copy and paste them into an email to your state Reps and state senators in Concord, and take a few copies with you when you are out doing errands and run into the folks running for office.

    If anyone has an idea for a bill requiring Home Care Agency owners to be LNA’s, and to cover the shifts when the staff calls out, that would be great. So would any ideas for day cares that are open early in the morning or late at night, because some cripples really do need help at 7am. Waiting in bed with a full bladder when you are 80 years old from 7 to 9am is really not a nice thing for us human beings to be doing to cute little old Grandmas. Lots of towns would save lots of money on 911 calls too, if getting an PCSP or an aide to help you get in and out of bed at 9pm, or to do the housework while waiting to wake you up for the midnight pills you have to take wasn’t nearly impossible.

  • Do the midday medication routine with the sick puppy, Bo the Blogging Dog. This is a half an hour of veterinarian nursing. Also a reminder that Bo’s blog has three unfinished posts and that he wouldn’t be so sick if I could just get his gofundme page set up for his surgery to remove rotted teeth.

  • Water the veggies and flowers…using the splitter and diverting system I designed to connect hoses to the shower. On the good side, we have tomatoes! And Peas! Hurrah’s! Half of whatever we harvest goes straight to the freezer, so there is a chance we shall avoid starvation and scurvy this winter!

    So that’s the list from now…Noon to 4:30pm

    Next, I have to:

  • Eat. A lot. Because of damage to my stomach from MS, I have to take in 1750 calories of vegetarian dairy free food every single day IF I don’t get out of bed just to keep my weight steady. If I move, garden, clean, work, or exercise, the number goes up.

    My Fitness Pal, a free android application, says that today I need to eat 2290 calories by midnight. So far I have had 400. So I have to eat 4 of the usual 6 meals, although now that I have cans of ensure 3 meals are 5 minute quickies, which helps immensely. It took my pharmacy and my gastroenterologist (stomach specialist) 6 months to get my Medicaid to approve it, because I still eat real food.

    I turned down the state’s solution to have a tube surgically inserted into my stomach (they cover ensure for that no problem) because I didn’t like the idea of wasting $5,000 of taxpayer money for a surgery I didn’t need. Plus, I really like eating real food….isn’t that a right in the constitution somewhere?

    I try really hard to stop working around 4:30pm so Brian and I can make a dinner and eat together. We love cooking together, trying new recipes, joking around. Most of the time we have an aide with us at least one night a week so that we can take a break from it or do the more complicated recipes where it is easy to miss a step and screw up the entire meal.

    We try to make it a date night kind of thing at least once a week, with the kitchen table done up with candles, the electric fireplace on, lights dimmed and so on. I highly recommend it to couples who sit there lamenting they don’t have the money to go out on dates. Make your own date. It’s cheaper, the food is healthier, and if we push the table out of the way we even have room to dance to a slow dance or two. Make sure to put umbrellas in the drinks. Even kool aid is more romantic with a swizzle stick and an umbrella.

    Most days I also try to watch Big Bang Theory…growing up, I was sort of a combination of two characters. The first is Leonard – always thinking, science oriented, accomplished parents…every night at dinner, I had to respond to my Dad’s question “So, What did you accomplish today?” – which was never a problem as I was always off learning or doing something.

    My Mom was one of the nurses chosen for the very first ICU at Elliot Hospital in Manchester, later did nursing while also being a Treasurer for my Dad’s multi state company with two subsidiaries, and after going back to school to get certified in geriatrics came darn close to also being able to take the exam to be certified in Psychiatric. Nursing also. Instead she became an expert at Medicare nursing home Billing and record keeping, working as a consultant across NH. Dad started that company after being a Bank Asst Vice President and head of a national trade group. Among the things he did was run IT department that created the first interest bearing checking account, installed and ran one of the first ATM machines in the state, and hired women as computer operators and programers. Not bad legacies for either one.

    The second character on Big Bang Theory I was like as a kid is Howard. Somewhere in the boxes of essays written longhand are a trove of stories about things I invented with empty toilet paper tubes, erector sets, and so on.

    Then, once evening hits, about 9pm it will be cool enough to:

  • cook at least one meal requiring the oven we can nosh off for a couple days…leaning toward oat bran muffins with cranberries

  • sit at the sewing machine and try to get at least one more bridesmaid dress finished

  • help Brian, who will be ruffling lace and cutting out mini top hat brims while watching TV

  • Do the sick puppy’s evening medicine routine

  • get hubby to be and puppies settled into bed at 11pm

  • More sewing or if cool enough get two more wedding cake layers baked and frozen. Or both. maybe get the two granddaughter’s over-skirts cut and sewn, rendering them about 90% complete.

  • Brainstorm a wedding related problem. I need some sort of free readily available wire or similar substance to create the Victorian hoops for all 8 dresses. Wire coat hangers are leading the contest, but anyone with ideas is welcome to chime in. Just no way I can swing $215 to rent slips with the hoops already in them.

  • Do my evening check of my Facebook and Google plus groups/circles, check my email

  • Play three rounds of a silly bubble blasting android game to unwind my brain (or, set a timer for 15 minutes of Reddit and tumbler humor)

  • And God willing, say my evening office in bed, turn off the lights, and go to sleep at 2 am.

At 6am, first alarm goes off to take the first of 6 medications…so much better than old regimen of 9 med times a day (Thank God for whoever invented estrogen gel and those arthritis patches with menthol!) And I start the entire thing all over again.

About once every two weeks I take a day off and sleep and rest. That was yesterday. It was cool because my stepson was here, and even though they wer gone fishing most of the day, we got to hang out and talk about Disney TV movies. Actually looking forward to taking 2 ½ hours off to watch “How To Build A Better Boy.” Maybe even invite ex-stepdaughter Mary and some other kids over make a mini party out of it.

OK, time to post this, share it, and cross it off the list. While gobbling down spaghetti and sauce and holding a sick puppy.

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Filed under Cooking, disability, Multiple Sclerosis and other Neurological Diseases, politics, poverty, Religion and Faith